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Date and time

2022-04-06 12.30-15.30 UTC

Attendees


Apologies


Objectives

Discuss and make progress on these issues:

  • Evaluation procedures 2 Observables (E2O) progress
  • Social Determinants of Health Observables
  • Impulsivity Observable

Discussion items

See below.


ItemDescriptionOwnerNotesAction

1Welcome & apologies

Remember recording!




2Conflicts of interest





3Minutes from previous meetingDaniel Karlsson



4E2O

The E2O project has produced a larger set of commonly used Evaluation procedure concepts as new concepts modeled using the Observables model (n=800+). The set was choosen from the 1000 most commonly used British primary care lab tests, excluding pure orderables.

There is evidence that re-modelling the content can bring significant improvements. There is also evidence that current content is not consistently represented and is in need of work, particularly if some content will stay in the procedure hierarchy.

There is still some disagreement about the requirement to represent orderables and reportables as distinct concepts, and if so, how these may be coordinated.

Two outcomes of the discussins  




5

Social Determinants of Health Observables

2022-02-21:

Presentation of Race and Gender assignment observables.

Alejandro Lopez Osornio in latin america race typically is not recorded, with few exceptions. 

Nashar Karim patient-reported, self-assigned, where is that seen in the modeling? It is represented through Interview technique.

Daniel Karlsson recording race is illegal in many European countries.

2022-03-21:

Presentation of proposals for modeling of race, gender, and sex observables.

For all these observables, a general pattern of role assignment was used, i.e. race is assigned for a person by an agent, e.g. the community. There was agreement in the group that this pattern was useful.

For gender and sex observables, there was discussion about the relation between the two. Most agreed that sex and gender are distinct entities, where one is not a kind of the other. There are also many variants of both gender, e.g.  and biological sex, e.g. fenotypic (external genitalia, hormone levels) or genotypic.

Further, other standards organizaiton is doing work, paritcularly in the sex and gender area, indluing the HL7 Gender Harmony project https://confluence.hl7.org/display/VOC/The+Gender+Harmony+Project and the ISO TC 215 work on "Sex and Gender in Electronic Health Records" https://www.iso.org/standard/83431.html




6Impulsivity observablePiper Allyn Ranallo



7Next meeting

Next meeting is April 18 2022 20.00 UTC.

Agenda:




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