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OVERVIEW
This page is used to organize CRG work on clinical findings and observable entities related to clinical findings and disorders in which a person experiences physical symptoms for which no known medical explanation can be found.
- Somatoform disorder
- Somatic symptom disorder
- Somatization disorder
- Illness anxiety disorder
- Functional neurologic disorder
- Factitious disorder
- Malingering
- Feigning illness, feigning symptoms
- Munchausen syndrome
OUTDATED TERMS
- Hypochondriasis
- Psychogenic illness
- Psychosomatic illness
- Hysterical illness
MAJOR FUNCTION, PROCESS, AND OTHER OBSERVABLE ENTITY CONCEPTS
Major Concepts | Commonly Used Terms | Working Definition |
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STAKEHOLDER GROUPS AND SUBJECT MATTER EXPERTS
RESOURCES
| Name | Type | Description | Notes |
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| DSM-I, DSM-II, DSM-III, DSM-III-R, DSM-IV, DSM-IV-R | Nosology | Previous editions of the the Diagnostic and Statistical Manual of Mental Disorders (DSM) | Useful for understanding the evolution concepts and specific terms used at different points in time |
| DSM-5, DSM-5 SCID | Nosology | Current edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM) | Useful for understanding terms and concepts as they are currently designed to be used by clinicians |
| ICD-10, ICD-10-CM | Nosology | Preview editions of the the International Classification of Disorders (ICD) | Useful for understanding the evolution concepts and specific terms used at different points in time |
| ICD-11 | Nosology | Current edition of the the International Classification of Disorders (ICD) | Useful for understanding terms and concepts as they are currently designed to be used by clinicians |
| UMLS | Meta-Terminology | Unified Medical Language System (UMLS) |
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PROJECT MILESTONES AND STATUS
| ID | Objective | Action Item |
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| 1 | Define scope of work | - Identify the major concept(s) around which to organize a manageable project (scope of work) (artifact: mabh-crg concept plan)
- Complete the major concept table and iteratively update as project progresses (CRG to finalize the definition for SNOMED once all research has been completed)
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| 2 | Understand uses cases | - Identify any non-standard use cases or pain points in research domain (artifact: mabh-crg use case document)
- Identify any non-standard use cases or pain points in clinical domain (artifact: mabh-crg use case document)
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| 3 | Understand major conceptualizations of the concept | - Perform environmental scan to identify major theoretical models of construct/concept domain (artifact: mabh-crg theoretical model document)
- Perform environmental scan to identify disorders and clinical variables relevant to the concept domain (artifact: mabh-crg clinical model document)
- Perform environmental scan to identify existing explicit representations of concepts in the domain in terminologies (nomenclatures, nosologies, classification systems, controlled vocabularies, and ontologies) (artifact: mabh-crg umls analysis matrix, mabh-crg terminology matrix)
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| 4 | Establish contact with key stakeholders and other potential project contributors | - Perform and environmental scan to Identify key stakeholders in the basic research, clinical research, clinical practice, and patient advocacy domain (artifact: mabh-crg stakeholder document)
- Create and implement a plan for engaging stakeholders willing to participate in the CRG for the duration of the specific concept review, either on calls or via discussion forum, or to provide the following:
- Stakeholder experience related to specific pain points or use cases in the domain
- Copies or screenshots of note templates, clinical notes, flowsheets, order sets, research protocols, other
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| 5 | Understand how concepts in the domain are currently represented in SNOMED | - Review concepts in observable entity hierarchy
- Create dot diagram of current state
- Create observable entity spreadsheet
- Review concepts in clinical finding hierarchy
- Create dot diagram of current state
- Create observable entity spreadsheet
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| 6 | Perform gap analysis | - Analyze concepts in observable entity hierarchy
- Create observable entity spreadsheet
- Create dot diagram of current state
- Perform review of dot diagram to identify potential duplicate, outdated, missing or inaccurately modeled concepts
- Update spreadsheet with changes including all defining relationships
- Analyze concepts in clinical finding hierarchy
- Create observable entity spreadsheet
- Create dot diagram of current state
- Perform review of dot diagram to identify potential duplicate, outdated, missing or inaccurately modeled concepts
- Update spreadsheet with additions or changes to concepts, including all defining relationships
- Identify missing concepts in other hierarchies (e.g., qualifier value, body structure) required to completely and accurately model observable entity and clinical finding concepts
- Create explicit, narrative definitions for all concepts
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| 7 | Create new and modify existing concepts in SNOMED | - Submit request for changes through CRS system or via template worksheet
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| 8 | Disseminate information about changes to SNOMED for concepts in the domain | |
