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Date and time

2022-04-06 12.30-15.30 UTC

Attendees


Apologies


Objectives

Discuss and make progress on these issues:

  • Evaluation procedures 2 Observables (E2O) progress
  • Social Determinants of Health Observables
  • Impulsivity Observable

Discussion items

See below.


ItemDescriptionOwnerNotesAction

1Welcome & apologies

Remember recording!




2Conflicts of interest





3Minutes from previous meetingDaniel Karlsson



4E2O

The E2O project has produced a larger set of commonly used Evaluation procedure concepts as new concepts modeled using the Observables model (n=800+). The set was choosen from the 1000 most commonly used British primary care lab tests, excluding pure orderables.

There is evidence that re-modelling the content can bring significant improvements. There is also evidence that current content is not consistently represented and is in need of work, particularly if some content will stay in the procedure hierarchy.

There is still some disagreement about the requirement to represent orderables and reportables as distinct concepts, and if so, how these may be coordinated.

Two outcomes of the discussins  




5

Social Determinants of Health Observables

2022-02-21:

Presentation of Race and Gender assignment observables.

Alejandro Lopez Osornio in latin america race typically is not recorded, with few exceptions. 

Nashar Karim patient-reported, self-assigned, where is that seen in the modeling? It is represented through Interview technique.

Daniel Karlsson recording race is illegal in many European countries.

2022-03-21:

Presentation of proposals for modeling of race, gender, and sex observables.

For all these observables, a general pattern of role assignment was used, i.e. race is assigned for a person by an agent, e.g. the community. There was agreement in the group that this pattern was useful.

For gender and sex observables, there was discussion about the relation between the two. Most agreed that sex and gender are distinct entities, where one is not a kind of the other. There are also many variants of both gender, e.g.  and biological sex, e.g. fenotypic (external genitalia, hormone levels) or genotypic.

Further, other standards organizaiton is doing work, paritcularly in the sex and gender area, indluing the HL7 Gender Harmony project https://confluence.hl7.org/display/VOC/The+Gender+Harmony+Project and the ISO TC 215 work on "Sex and Gender in Electronic Health Records" https://www.iso.org/standard/83431.html




6Impulsivity observablePiper Allyn Ranallo



7Nesting in Observables

In relation to the change in modeling of primary and secondary/metastatic neoplasms, there has been a comment from Ed Cheetham about its implication for Observables concepts.

I can see how this approach will model existing combined primary and metastatic disorders (as now, through role grouping but including the new pathological process role), but is it suitable for complex observables such as 2960001000004100 |Presence of direct invasion by metastatic carcinoma of lymph node in excised specimen to perilymphatic tissue (observable entity)|? This too makes reference to both metastasis and local invasion, but its definition is made up of multiple self-grouped attributes. If the current 'inheres in=carcinoma, metastatic' becomes 'inheres in=carcinoma' and 'characterizes=discontinuous metastatic spread", how will this 'work' with the existing 'characterizes=direct local invasion' pair and current cardinality rules?

 Maybe this is covered by the line in the EAG paper that states "...The proposal involves creating new more specific subtypes of 1204295007 |Malignant proliferation of neoplasm (qualifier value)| as required e.g. Direct local invasion of primary malignant neoplastic proliferation (qualifier value) to model content..."? If so, this further complicates the role of 'characterizes' - since it now has a bearing on the interpretation of the 'inheres in' attribute (which is not included in its text definition – “This attribute specifies the process which the property describes, and on which the property (of this observable) depends.”).




8Next meeting

Next meeting is April 18 2022 20.00 UTC.

Agenda:





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