2022-03-21 - OBSERVABLE Meeting

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Daniel Karlsson

James R. Campbell

2022-02-21:

Presentation of Race and Gender assignment observables.

Alejandro Lopez Osornio in latin america race typically is not recorded, with few exceptions. 

Nashar Karim patient-reported, self-assigned, where is that seen in the modeling? It is represented through Interview technique.

Daniel Karlsson recording race is illegal in many European countries.

2022-03-21:

Presentation of proposals for modeling of race, gender, and sex observables.

For all these observables, a general pattern of role assignment was used, i.e. race is assigned for a person by an agent, e.g. the community. There was agreement in the group that this pattern was useful.

For gender and sex observables, there was discussion about the relation between the two. Most agreed that sex and gender are distinct entities, where one is not a kind of the other. There are also many variants of both gender, e.g.  and biological sex, e.g. fenotypic (external genitalia, hormone levels) or genotypic.

Further, other standards organizaiton is doing work, paritcularly in the sex and gender area, indluing the HL7 Gender Harmony project https://confluence.hl7.org/display/VOC/The+Gender+Harmony+Project and the ISO TC 215 work on "Sex and Gender in Electronic Health Records" https://www.iso.org/standard/83431.html

Daniel Karlsson

2022-03-21:

Scale observable pattern https://docs.google.com/presentation/d/1YYswiRmsHBx7iq7mWrzOwDthfWlRDQQQuQI56Ut4oOY/edit?usp=sharing

Agreement to keep to existing representation of assessment scale observation in SNOMED CT (for now): 1 assessment scale concept, 1 procedure "assessment using X", and 1 observable per reportable (sub)scale value, given that there is permission from IP owner.

James R. Campbell to model risk score concepts/sleep scale observables.

Daniel Karlsson

James R. Campbell

2022-02-21:

Presentation of Race and Gender assignment observables.

Alejandro Lopez Osornio in latin america this typically is not recorded, with few exceptions. 

Nashar Karim patient-reported, self-assigned, where is that seen in the modeling? It is represented through Interview technique.

Daniel Karlsson recording race is illegal in many european countries.

Daniel Karlsson

Next meeting is March 21 2022 20.00 UTC.

Agenda:

• Gender and race (assignment, identity) observables James R. Campbell
• Interpretation (ordinal scale) observables and ratios Nashar Karim