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Linda Parisien

Owner
2237 View 6 Comment Resolved Comments enabled In the category: Undefined

Several «Allergy» concepts have been inactivated without being associated to an active concept. Is the plan to add these association later?

For example: Allergy to dye (disorder) is now inactivated and is not associated to concept Allergic reaction caused by dye (disorder).

Contributors (3)

6 Comments

  1. Lesley MacNeil

    Bruce Goldberg are you able to respond to this question?

  2. Lesley MacNeil

    Hi Linda

    Bruce Goldberg has provided a response for all, which I am posting below


    “Several allergy to substance groupers were reviewed by the allergy CRG and were recommended for retirement based on the feeling they were not clinically useful. For example, dyes represent a chemically diverse group of substances and someone allergic to a particular dye would not be expected to be allergic to a structurally dissimilar dye.  The specific dye responsible for the allergy would usually be known. The corresponding allergic reaction concepts will also be retired at some point as will many of the grouper substances themselves”.

     

    Bruce J. Goldberg, M..D., Ph.D.

    Director, S.C.P.M.G. Regional Allergy-Immunology Lab

  3. Matt Cordell

    I think there's a more general problem here, in that none of the concepts inactivated due to "non-conformance" have associations provided. Not just with allergies, but all throughout the terminology.

    This increases maintenance effort for everyone downstream from SI (Extensions + implementers), as the associations need to be tracked down. (And quite often/usually there is one)

    1. Elaine Wooler

      Agree Matt non-conformance is a difficult one for extensions and implementers and likewise we have spent considerable time closing the loop on these and have had complaints from users of the terminology such as those devising business rules for payments that this type of retirement is problematic.

      1. Matt Cordell

        yes, I imagine the DM+D team are busy too..

        1. Elaine Wooler

          Indeed the impact of massive changes in drugs/substances area resulted in delays in our release plan.  I've pointed them to the Daily Build data explorer so they can get a heads up for the January release.  I've suggested we use that more but its difficult as not sure when the data is stable.