Project Directory
Items 1 through 17 are mandatory index, please do NOT remove
ID | Document type | Sources |
|---|---|---|
| 1 | Content Roadmap | Reputational |
| 2 | Scope and Deliverables | Clinical drug concepts that are in-scope but not currently present in SNOMED CT |
| 3 | Project Overview (Status, Schedule, Risks) | Project Status Orphanet |
| 4 | Project Team Members | |
| 5 | Agreement (s) | By Jane Millar |
| 6 | Related Project Group | By Jane Millar |
| 9 | Initiation Document Authoring | By Jane Millar |
| 12 | Trello board | Jane Millar runs the monthly meetings with Ian and external people |
| 13 | Meetings | Jane Millar takes minutes and shares per emails and Trello Board |
| 15 | Google drive | https://drive.google.com/drive/folders/0BzrvJafh3r88UUV5VVd6cXJtOG8 |
| 17 | Release Checklist | Release Acceptance Criteria - Orphanet |
Roadmap
| 2019 | Project Scope | Deliverables | Releases |
1. | Orphanet Updates | Orphanet content additions from the prioritisation list (approximately 3500 concepts) complete. | Jan 2020 |
Updates to mapping file based on January 2020 SNOMED CT International Release and feedback. Handover to SNOMED International. | Jan 2020 | ||
| 2020 | Project Scope | Deliverables | Releases |
Technical QA of mapping table and production of release. 31 March 2020 - Alpha release mapping table and release notes. December 2020 - Collation and review of feedback. | Jul 2020 | ||
| 2021 | Project Scope | Deliverables | Releases |
October 2020 to April 2021 SNOMED CT content updates based on feedback (no extension of map) and also obsolete and deprecated entries file from INSERM. Correction of any mapping issues based on feedback. Orphanet production release based on the July 2021 International release and July 2021 Orpha nomenclature pack for coding. | Post July 2021 International release | ||
| 2022 | Project Scope | Deliverables | Release |
In October 2021 the first production release of SNOMED CT to Orphanet maps was published. Updates were made to the maps based on feedback from the Alpha release with no extension of the maps that were originally in scope for the project. Map Extension In 2022, the project scope will be extended in response to member feedback. The existing product will be extended by a further 1025 entries. Of the 1025 proposed new entries, 255 have an exact match to an existing concept in SNOMED CT and 107 entries have a probable match. These proposed maps will be reviewed by Orphanet and if acceptable these entries will be added to the Orphanet 2022 production release. If the proposed map is not acceptable, a new concept will be added to SNOMED CT. From the 1025 entries reviewed, it was identified that 663 entries will require a new concept to be added to SNOMED CT. These new concepts will be added over 4 International (6 monthly) release cycles. Once the new concept has been published, and the map validated, the new entry will be included in the Orphanet production release. Map Maintenance There will be ongoing correction of any mapping issues based on feedback. There will also be biannual updates of the maps based on content that has been made obsolete or deprecated in Orphanet or inactivated in SNOMED CT. | Post July 2022 International release |