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19 March 2020Input on additional description types
Please post your final responses in the Country response table below. Discussion comments can be made as comments below.

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CountryDateResponse
 Sweden2020-03-23 

We already have language reference sets, which is a powerful tool to specify description use contexts such as (potentially) patient friendly/common language terms, speciality terms. Linguistic variants (abbreviations, singular/plural forms, some derivations) we would (mostly) consider as acceptable synonyms. We are still in the process of finding out what constitutes over use of language reference sets.

"Search terms" we assume are generally not (true enough) synonyms and thus might require a new description type OR a new acceptability value and a slight(?) re-interpretation of what 900000000000013009 | Synonym (core metadata concept) | means.

Australia2020-03-24

Very similar approach to Sweden. Abbreviations are already supported and editorial guidance exists.

I could see a "patient friendly" synonym type being viable for when the same synonym will apply to a large number of specific concepts. And patient doesn't "need" to know that that much detail. "Patient-friendly" terms are inherently "lossy" - reduced detail. I'm not sure about the value of truncation? We create a lot of synonyms, specifically aimed at a consistent search experience.

As an aside, we've been informed by a clinician that we're in a (quote) "post mellitus" world, and "Diabetes" is an appropriate/preferrable synonym to "Diabetes mellitus". We're in looking into how we'll action this.

Norway2020-03-27
2020-
We have had input that there is a need for Patient-friendly terms. Personally, I am not sure of the consequences. It is important such at term is semantically equivalent to the FSN, so in cases where this cannot be achieved, a patient-friendly term cannot be assigned (at least not within the Scope of SNOMED CT). It is really up to SNOMED to define what a patient-friendly term should be defined as. Search terms / abbriviations are Language spesifici and should be solved outside of SNOMED CT. Search term lists are also shared With other terminologies, e.g. ICD.
WW
   
   
Canada 2020-04-07 For the time being we suggest:

•UI terms should be kept in local extensions to meet the local requirements
•Keep it simple and use the existing language refset mechanism
•Use a description refset for searching (same as we did for Apelon additional synonyms)
•Currently when we include terms that may “deviate” from the approved editorial guidelines, the rationale and rules are documented in the national guidelines.

But we do have questions related to the SNOMED Edition(s) Future Strategy:

•How would the proposed changes impact the future of the SNOMED International Community Edition, SNOMED CT International Edition and Clinical Core Edition?
•If more than one country is using the same « patient-friendly » terms will they be included in the International Edition?
•Will these additions be documented in a specific « patient-friendly » guide?
•How important is it to have a descriptionType of Abbreviation when the term is obviously an abbreviation?
•Suggest that the patient-friendly terms be created outside of the core or community files, so organizations can decide if they want to use them or not.

 US 2020-04-08

 Sounds like we are moving away from reference terminology towards interface terminology. This is not necessarily a bad thing, but I think we should clearly acknowledge the move and possibly bound it. Otherwise, there is a significant risk for scope creep.

Regardless of the mechanism, what is important is to be able to capture the type of variant explicitly (e.g., to select/filter out such variants in specific contexts).

 UK08-04-2020 We also occasionally get asked about 'patient-friendly' representations, particularly as more and more have access to their records online.  And certainly for e.g. Diagnostic Imaging, and more recently, pathology content, truncations and abbreviations have been something we have had to contend with, and finding ways of representing these within the current Editorial Guide principles can be problematic.  But as per the US comment, I would second the concerns regarding 'scope creep' and the move towards an interface terminology.       
   
   
   
   






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