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Version 1.0
Introduction
There has recently been a call from some members for the addition of “Patient-friendly terms” to SNOMED CT to support consumer health applications. This brief is a summary of discussions held by the Editorial Advisory Group. Additional review has been requested from was made by the Content Managers Advisory Group at the April 2017 Business Meeting in London related to the benefits and detriments of inclusion of this type of description to the International release and the position that SNOMED International will take regarding requests to add this type of content.
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- Patient-friendly terms would only be included in the International release as US or GB English, thus not supporting International consumer terminology
- The potential set of patient-friendly terms is relatively unbounded and may include abbreviations and acronyms that would be in conflict with SNOMED Ct editorial policy
- The SNOMED CT extension and refset mechanisms were originally created to support multi-lingual and context dependent dialect use cases for linkage to the International content.
- The International release of SNOMED CT does not currently have a way of assigning a description as "equivalent to" or "broader than" the concept that it is related to
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SNOMED International position on addition of “patient-friendly terms” to the International release of SNOMED CT
SNOMED International encourages the addition of Patient-friendly vocabulary to extensions. The International Release of SNOMED CT will accept "patient-friendly" descriptions only when they coincidentally adhere to the criteria for addition of descriptions as described in Section 7.2 of the SNOMED CT Editorial Guide.
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The SI Education and Product Services team are working on a 'Practical Guide to Extensions' during 2017. The EAG agreed to request requested guidance on addition of patient friendly terms in extensions to be included in the 'Practical Guide to Extensions' and also expressed a strong interest in reviewing draft guidance on this topic. The AG EAG also indicated a preference for this guidance to utilize the existing dialect and language mechanisms (i.e. Language Reference Sets) for this purpose.
References
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