SNOMED CT Editorial Advisory Group

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Introduction

There has recently been a call from some members for the addition of “Patient-friendly terms” to SNOMED CT to support consumer health applications.  This brief is a summary of discussions held by the Editorial Advisory Group as well as comments from . Additional review was made by the Content Managers Advisory Group at the April 2017 Business Meeting in London related to the benefits and detriments to the of inclusion of this type of description to the International release and the position that SNOMED International will take regarding requests to add this type of content.

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  • Patient-friendly terms would only be included in the International release as US or GB English, thus not supporting International consumer terminology
  • The potential set of patient-friendly terms is relatively unbounded and may include abbreviations and acronyms that would be in conflict with SNOMED Ct editorial policy
  • The SNOMED CT extension and refset mechanisms were originally created to support multi-lingual and context dependent dialect use cases for linkage to the International content.
  • The International release of SNOMED T CT does not currently have a way of assigning a description as "equivalent to" or "broader than" the concept that it is related to

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SNOMED International position on addition of “patient-friendly terms” to the International release of SNOMED CT

SNOMED International strongly encourages NRCs and extension managers to add encourages the addition of Patient-friendly vocabulary to their extensions. The International Release of SNOMED CT will accept "patient-friendly" descriptions only when they coincidentally adhere to the criteria for addition of descriptions as described in Section 7.2 of the SNOMED CT Editorial Guide.

SNOMED International guidance for the use of Patient-friendly terminology in SNOMED CT extensions and refsets.

Note: This area needs to be fleshed out with the specific mechanisms in place to support the extensions; e.g. refsets, modules

The SI Education and Product Services team are working on a 'Practical Guide to Extensions' during 2017. The EAG requested guidance on addition of patient friendly terms in extensions be included in the 'Practical Guide to Extensions' and also expressed a strong interest in reviewing draft guidance on this topic. The EAG also indicated a preference for this guidance to utilize the existing dialect and language mechanisms (i.e. Language Reference Sets) for this purpose. 

References

  1. Hong Y, Ehlers K, Gillis R, Patrick T, Zhang J. A usability study of patient-friendly terminology in an EMR system. Stud Health Technol Inform. 2010;160:136-40.

  2. Medical terminologies for patients, Elena Cardillo, Institute of Informatics and Telematics UOS Rende (CS), National Research Council, Consenza, Itally (http://www.semantichealthnet.eu/SemanticHealthNet/assets/File/SHN%20288408%20D3_3%20rev2%20Annex%201_Cardillo_SHN_D3_3_final.pdf) (accessed March 9, 2017

  3. Bridging the Terminology Gap between Health Care Professionals and Patients with the Consumer Health Terminology (CHT), Philip D. Marshall MD, MPH, WellMed, Inc., Oregon Health Sciences University, Portland, Oregon; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2244063/pdf/procamiasymp00003-1117.pdf (accessed March 9, 2017)

  4. Italian Consumer-oriented Medical Vocabulary (ICMV); https://ehealth.fbk.eu/resources/italian-consumer-oriented-medical-vocabulary-icmv (accessed March 9, 2017)

  5. Consumer Health Vocabulary Initiative; http://consumerhealthvocab.chpc.utah.edu/CHVwiki/ (accessed March 9, 2017)