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Principles

When creating a new reference set it is important that the reference set metadata concept (which identifies and names the reference set) and the associated reference set members belongs to a module of the reference set producer. I.e. if a reference set is created as part of an extension, the reference set metadata concept should belong to a module within the namespace of the extension producer. 

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For more information about the different reference set types and their data structures, please refer to the reference set release file specification.

Please note that for all reference sets, there should be guidance on what is possible and what is not possible. For some International reference sets, it is acceptable and even required to add extension rows to the International reference set. For example, the Module Dependency Refset, the MRCM Module Scope Refset, and Language Refset. This is not necessarily applicable to all reference sets. Over time, further guidance in this area will be developed.

Process

The table below provides a summary of the process to follow when creating a new reference set. 

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File TypeProcess

Define the reference set in the metadata hierarchy

Following steps should be taken for creating the reference set concept:

Concept file

  1. Create a

    Gloss
    SpacePreSpacetruefalse
    tconcept
    for the reference set

Description file

2. Add up to three

Gloss

PreSpace

false
tDescriptions
for the reference set concept. I.e. the FSN, the
Gloss

PreSpace

false
tPreferred Term
and optionally the purpose, see

Language reference set3. Specify the acceptability of the descriptions in the applied Language Reference Set 
Relationship file

4. Add an | is a | 

Gloss

PreSpace

false
tRelationship
to link the reference set to the appropriate pattern

Define the reference set Attributes within the metadata hierarchy

Add new

Gloss

PreSpace

false
tconcepts
for each of the reference set member attributes, if necessary. If the reference set attributes describing the pattern are adequate to describe the reference set's attributes, then these can be used instead. You may add new
Gloss

PreSpace

false
tconcepts
for some of the attributes, and reuse existing
Gloss

PreSpace

false
tconcepts
for other attributes, if you wish.

Following steps should be taken for each attribute that you wish to create:

Concept

1. Add a

Gloss

PreSpace

false
tconcept
for the attribute

Description

2. Add

Gloss

PreSpace

false
tDescriptions
for each of the new attribute.

Language Reference Set

3. Specify the acceptability of the descriptions in the applied Language Reference Set 

Relationship

4. Link the attribute with an | is a |

Gloss

PreSpace

false
tRelationship
into the
Concept
t900000000000457003 | Reference set attribute (foundation metadata concept) |
ShowFormatinline
Gloss
PreSpacefalse
thierarchy


Note

If new attribute values need to be created these should also be added as SNOMED CT concepts and placed as subtypes of the concept

Concept
t900000000000457003 | Reference set attribute (foundation metadata concept) |
, following the process described above.


Create the Descriptor for the reference set

If the reference set does not follow an existing reference set pattern, the additional attributes specific for this customized reference set should be included in the Descriptor reference set.

Reference Set Descriptor Reference Set

A new reference set member is created in the reference set Descriptor for each attribute in the reference set pattern. For guidance on creating a reference set member, please see 56.43.53.1 Add Members to a Reference Set. For further introduction to the reference set Descriptor, please see 4.1.1. Reference Set Descriptor in Practical Guide to Reference Sets.

Add members to the reference set

Reference set members are added to the reference set, which includes specifying the attribute values for each reference set member, see
6.3.3.1 Add Members to a Reference Set.

 

For additional information, see the practical guide to reference sets:  13.1 How to create a new Reference Set using an existing pattern

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