SNOMED CT Editorial Advisory Group

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Proposed position on addition of “patient-friendly terms” to the International release of SNOMED CT

SNOMED International strongly encourages NRCs and extension managers to add encourages the addition of Patient-friendly vocabulary to their extensions. The International Release of SNOMED CT will accept "patient-friendly" descriptions only when they coincidentally adhere to the criteria for addition of descriptions as described in Section 7.2 of the SNOMED CT Editorial Guide.

SNOMED International guidance for the use of Patient-friendly terminology in SNOMED CT extensions and refsets.

Note: This area needs to be fleshed out with the specific mechanisms in place to support the extensions; e.g. refsets, modules

The SI Education and Product Services team are working on a 'Practical Guide to Extensions' during 2017. The EAG agreed to request guidance on addition of patient friendly terms in extensions to be included in the 'Practical Guide to Extensions' and also expressed a strong interest in reviewing draft guidance on this topic. The AG also indicated a preference for this guidance to utilize the existing dialect and language mechanisms (i.e. Language Reference Sets) for this purpose. 

References

  1. Hong Y, Ehlers K, Gillis R, Patrick T, Zhang J. A usability study of patient-friendly terminology in an EMR system. Stud Health Technol Inform. 2010;160:136-40.

  2. Medical terminologies for patients, Elena Cardillo, Institute of Informatics and Telematics UOS Rende (CS), National Research Council, Consenza, Itally (http://www.semantichealthnet.eu/SemanticHealthNet/assets/File/SHN%20288408%20D3_3%20rev2%20Annex%201_Cardillo_SHN_D3_3_final.pdf) (accessed March 9, 2017

  3. Bridging the Terminology Gap between Health Care Professionals and Patients with the Consumer Health Terminology (CHT), Philip D. Marshall MD, MPH, WellMed, Inc., Oregon Health Sciences University, Portland, Oregon; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2244063/pdf/procamiasymp00003-1117.pdf (accessed March 9, 2017)

  4. Italian Consumer-oriented Medical Vocabulary (ICMV); https://ehealth.fbk.eu/resources/italian-consumer-oriented-medical-vocabulary-icmv (accessed March 9, 2017)

  5. Consumer Health Vocabulary Initiative; http://consumerhealthvocab.chpc.utah.edu/CHVwiki/ (accessed March 9, 2017)